Ally Cadence Trust for Spinal Muscular Atrophy
0800 23 43 762
0333 44 43 762
" Supporting families affected
  by SMA Type 1 "
" Supporting families affected
  by SMA Type 1 "
0800 23 43 762
0333 44 43 762
0800 23 43 762
0333 44 43 762
" Supporting families affected by SMA Type 1 "


ACT for SMA Butterfly Logo
The past few weeks have been challenging. We have had 3 new families over the Summer holidays (plus our usual visits) and lots of fundraising events. We learned last week that our Children In Need Application was rejected. This, of course, was a huge disappointment to us as it was to be used to pur... Read More
Tags: DonationsHelpDonateEquipmentCrowdfunding
Author: Emma Humphries
20 August 2016
Our Wigan to Southport Ride
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After attending the Butterfly Ball last year and hearing some of the stories of what people had done to raise money for the Ally Cadence Trust, I decided I wanted to do something to raise money myself. I had recently got in to cycling with some friends from work so this seemed to be the perfect cho... Read More
Tags: FundraisingCycling
Author: Andrew Mason
17 August 2016
How would I describe my first year as an ACTSMA Trustee
How would I describe my first year as an ACTSMA Trustee? The first thought that pops into my head when I ask myself this question is, rewarding.  Over the past year I have gotten heavily involved in the charity and fundraising.  Things I have done include emailing Companies for donations ... Read More
Tags: RewardingTrustee
Author: Kim Trafford
09 June 2016
Mini Mudder by Jay Humphries
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This year my mum entered Tough Mudder for the 4th time, I told her I really want to do it with her as soon as I'm old enough!  She said "Why don't you enter Mini Mudder?" I really wanted to do Mini Mudder last year but we didn't have time so this was a great idea.  My mum entered on Saturd... Read More
Tags: FundraisingTough MudderMini Mudder
Author: Jay Humphries
26 May 2016
Time to train
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That picture up there... it was lie ;)  I'm back for my 4th Tough Mudder!  With just 6 weeks to go it really is time to concentrate on the fitness levels. We will be completing a 12 mile course of around 20 + obstacles. These obstacles are extremely challenging and many are more mind over... Read More
Tags: FundraisingTrainingTough MudderMini Mudder
Author: Emma Humphries
12 April 2016
Prepping for this years Butterfly Ball
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It's that time of year again that we start the long preparation for our ball!  We're doing pretty well so far and have already booked the hotel, singer, disco and auctioneer and had a think about the decorations... that's without the huge amount of time and effort that has been going into makin... Read More
Tags: FundraisingButterfly BallDonations
Author: Emma Humphries
21 March 2016
2531 Days Later
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It's been 2,531 days (the equivalent of 60,744 hours or 3,644,640 minutes) since we said goodbye to Ally. Compare that to the short 190 days that she was here and it really does feel like a lifetime ago. We've been sat this afternoon looking through the footage that Martin at Focused Producti... Read More
Tags: ReflectionDiagnosisFilming
Author: Emma Humphries
21 February 2016
Moving forward in 2016
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A new year can always be a particularly hard time for those that have lost loved ones, and the thought of entering a new year without them can be both daunting and upsetting.  We have just entered our 7th year without Ally, and although yes it does get easier with time, it can still ... Read More
Tags: New YearAwarenessFundraisingThanks
Author: Emma Humphries
05 January 2016
Where It All Began
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We decided to set this blog up to give a little more insight into the work we do on a more personal basis.    We first started fundraising at the end of March 2009, just 2 weeks after Ally passed away (you can find her full story on our home page).  When we started this fundrais... Read More
Tags: ReflectionAllyCharityHistoryJourney
Author: Emma Humphries
01 January 2016
Blog Archive
The Act Sma Blog Archive contains all of our blog posts, organised by year, and month.
Please use the links below to view a section of the archive.
All blog posts from 2016
Posts from June 2016
Posts from May 2016
Posts from April 2016
Posts from March 2016
Posts from February 2016
Posts from January 2016
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