0800 23 43 762
0333 44 43 762

" Supporting families affected
by SMA Type 1 "

0800 23 43 762
0333 44 43 762

" Supporting families affected by SMA Type 1 "

Poems

Below are a collection of poems that have been submitted to us by parents that found them to be of some comfort. If you would like to submit a poem please use the form on our contact page.

~~ A Father's Grief ~~

It must be very difficult

To be a man in grief,

Since "men don't cry"

and "men are strong"

No tears can bring relief.

It must be very difficult

To stand up to the test,

And field the calls and visitors

So she can get some rest.

They always ask if she's all right

And what she's going through.

But seldom take his hand and ask,

"My friend, but how are you?"

He hears her crying in the night

And thinks his heart will break.

He dries her tears and comforts her,

But "stays strong" for her sake.

It must be very difficult

To start each day anew.

And try to be so very brave-

He lost his baby too.

~~ What Makes A Mother ~~

I thought of you and closed my eyes

And prayed to God today.

I asked what makes a Mother

And I know I heard him say.

A Mother has a baby

This we know is true.

But God, can you be a Mother

When your baby's not with you?

Yes, you can He replied

With confidence in His voice

I give many women babies

When they leave is not their choice.

Some I send for a lifetime

And others for a day.

And some I send to filll the womb

But there's no need to stay.

I just don't understand this, God

I want my baby here

He took a breath and cleared His throat

And then I saw a tear.

I wish I could show you

What your child is doing today.

If you could see your child smile

With other children and say

"We go to earth and learn our lessons

Of love and life and fear.

My Mommy loved me oh so much

I got to come straight here.

I feel so lucky to have a Mom

Who had so much love for me

I learned my lesson very quickly

My Mommy set me free.

I miss my Mommy oh so much

But I visit her each day.

When she goes to sleep

On her pillow is where I lay.

I stroke her hair and kiss her cheek

And whisper in her ear

"Mommy don't be sad today

I'm your baby and I'm here."

So you see my dear sweet one

Your children are OK

Your babies are here in My home

And this is where they'll stay.

They'll wait for you with me

Until your lesson is through

And on the day that you come home

They'll be at the gates for you.

So now you see what makes a Mother

It's the feeling in your heart.

It's the love you had so much of

Right from the very start!

(Author, Jennifer Wasik)

~~ This Invisible Cord ~~

We are connected, My child and I,

by an invisible cord, not seen by the eye.

It's not like the cord that connects

us 'til birth

This cord can't be seen by any on Earth.

This cord does its work right from the start.

It binds us together, attatched to my heart.

I know that it's there, though no one can see,

The invisible cord from my child to me.

The strength of this cord is hard to describe.

It can't be destroyed, it can't be denied.

It's stronger than any cord man could create,

It withstands the test, can hold any weight.

And though you are gone,

Though you are not here with me,

The cord is still there, but no one can see.

It pulls at my heart, I am bruised...I am sore,

But this cord is my lifeline, as never before.

I am thankful that God connects us this way,

A mother and child--Death can't take it away!

(Author unknown)

~~ Little Snowdrop ~~

The world may never notice

If a Snowdrop doesn't bloom,

Or even pause to wonder

If the petals fall too soon.

But every life that ever forms,

Or ever comes to be,

Touches the world in some small way

For all eternity.

The little one we long for

Was swiftly here and gone.

But the love that was then planted

Is a light that still shines on.

And though our arms are empty,

Our hearts know what to do.

Every beating of our hearts

Says that we love you.

(Author unknown)

~~ Tiny Angels ~~

Tiny Angels rest your wings

sit with me for awhile.

How I long to hold your hand,

And see your tender smile.

Tiny Angel, look at me,

I want this image clear...

That I will forget your precious face

Is my biggest fear.

Tiny Angel can you tell me,

Why you have gone away?

You weren't here for very long...

Why is it, you couldn't stay?

Tiny Angel shook his head,"

These things I do not know...

But I do know that you love me,

And that I love you so.

(Author unknown)

~~ I’m going to tell you something ~~

I’m going to tell you something,

I hope you'll never have to know.

Ill tell you how a heart can break

and tears can constant flow.

I lost my baby girl you see

an angel in my eyes

The lord reached right down, took her hand

and led her to the skies.

Please don’t ever tell me,

that time will heal my pain

because not even time,

will bring her back again.

Please do not forget my child,

she was a person too,

forever she will live,

inside of me and you.

Just tell me that’s she’s happy,

in that land way up above,

she’s snuggled in an angels wings

wrapped in mummy & daddy’s love.

(Author unknown)

~~ I Did Not Die ~~

Do not stand at my grave and weep;

I am not there. I do not sleep.

I am a thousand winds that blow.

I am the diamond glints on snow.

I am the sunlight on ripened grain.

I am the gentle autumn's rain,

When you awaken in the morning's hush,

I am the swift uplifting rush

Of quiet birds in circled flight.

I am the soft stars that shine at night.

Do not stand at my grave and cry;

I am not there. I did not die.

(Author unknown)

~~ When God saw you getting tired ~~

When God saw you getting tired,
and a cure was not to be.
He put his arms around you,
and whispered come to me.

He didn't like what you went through,
and he gave you rest.
His garden must be beautiful,
he only takes the best.

And when we saw you sleeping,
so peaceful and free from pain.
We wouldn't wish you back,
to suffer that again.

Today we say goodbye,
and as you take your final rest.
That garden must be beautiful,
because you are one of the best.

(Author unknown)

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Blog Archive

The Act Sma Blog Archive contains all of our blog posts, organised by year, and month.

Please use the links below to view a section of the archive.

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